08/30/09 Well we had the weekend off from the hospital, both of us did not feel great yesterday I had a headache that just would not go away and Joe was real tired and his legs were sore and he still has the rash. I worked on packing up some stuff that we would not need before we leave. Tomorrow we will know when we are leaving, I have my brother Tom coming by train tomorrow so he can be here to drive us back to Syracuse when we get the OK. Joe does not want me driving us back, he thinks it is to much for me. Today we both were feeling better, so we went for a walk early it was sunny and warm around 75 degrees. The nice thing is once we get outside and in the open area away from people Joe can take his mask off. Joes legs are still bothering him, the rash though it still is covering most of his body it does look like it is getting better. I was thinking today that I spend most of my day getting Joes pills ready he has pills to take at 7am, 8am, 12pm, 2pm, 3pm, 5pm, 7pm, 8pm, 11pm, and 2am. The 2pm and 2am will go away once the rash does because that is benadryl. At least we are down to eight different pills, better than the fifteen we started out with. Tomorrow we will find out which ones we will be going home with. Joe's sister Dona asked that I let everyone know that if they need information on Joe's benefit or want to volunteer to give her a call at 315-622-4872. Ok so I will let you know about tomorrow, need to go rub Joe down with some Aveeno for the rash and deep heat for the leg pain. Good Night, God Bless and we love you.
Hi Mary and Joe,
ReplyDeleteCan't wait till you are both home. I am glad that Joe's rash is getting better. It was great that you were both able to get out and take a walk.
Love Linda