08/27/09 Fifth Week Of Treatment

08/27/09 Sorry you did not hear from me yesterday Joe's not feeling well, his legs have been aching so I was massaging them helping him relax and it got late. We were both already wiped out from the emotional stress of the last couple of days. Joe is also running a low grade temp of 99.8 and has rash all over his body. They took a biopsy of it off his back today to see if it is anything more than a rash. His lips and eyes also look swollen. They want to try and get Joe home next week, so he can be with his family. Besides the leg pain and the rash he is doing pretty good his levels are coming up, today he did not need blood or platelets. Tomorrow if he does not have a fever and his levels are still good they are thinking of taking out the catheter from his chest. Boston is crazy right now with Senator Ted Kennedy's funeral being two miles down the road from us, with five presidents coming to town driving is going to be crazy tomorrow and Saturday. Well I almost made it through the whole treatment without my jeep getting hit in the parking garage, when I came out today there was a scrape in the back bumper, no dent thank goodness. The other day we got to meet the founders of the foundation Secure Harbor, these are the people who sponsor the apartment we are staying in. Tim and Connie Hornbeck, Tim is a Amyloidosis patient who also went through a Stem Cell Transplant. Please take a few minutes to check out the website Secureharbor.org, Joe and I will be big supporters of Secure Harbor once Joe's treatment is completed and he is on his feet again. There also are links on the website to the Amyloidosis Foundation and the Boston Medical Center. Well we hope to see you soon, God bless and we love you.