August 17, 2010

8/17/10 Joe celebrated his 1 year stem cell birthday on August 31th 2010. We had a small family party the weekend before and then went to dinner with friends on the 13th. Joe still has many health issues but is doing pretty good for what he has gone through currently we are leaving for Boston on August 29th 2010 for his yearly check up to see if he is still in remission. He still goes to his doctors here in Syracuse once a month to be monitored. He is having neuropathy in his arm and hands could be from the amyloidosis or the chemotherapy, he had testing done and the ulnar nerve is damaged so he will see a surgeon when we get back from Boston to decide on what needs to be done next. Please pray for good results from Joe's testing and please pray for all Amyloidosis patients, just this past week we lost a fellow patient he was 44 years old and was misdiagnosed for 6 months he had a wife and three small children. I truly feel he would still be alive if the doctors were more aware of Amyloidosis and tested for it early on in his illness when he had multiple organs involved. Very sad please get the word out on Amyloidosis, God Bless you and we love you all.