Sunday, October 11, 2009

10/11/2009

10/11/2009 Well the last two weeks have not been real good Joe has not been feeling well, we have been to the doctors several times trying to get to the bottom of what is going on. Joe has been very cold he can not warm up, not like when you and I get a chill and we put a sweater on and we feel better, this is constant no matter what he does he is cold and he is cold to the touch. I have tried everything to make it better for him I have bought him long johns, sweat pants and sweatshirts to wear, I recently bought him a electric blanket that seems to help. He has the heat on and it is like a sauna and still he can not get warm. He is also achy and has been throwing up off and on. Yesterday he was trying to take a shower and had to sit down during it because he was to weak to finish. So to say the least I am worried, the doctors have been trying to figure out what is going on they have run blood cultures twice to see if it is a infection we are waiting for the results from the ones done on Thursday. Joe has the blood disorder factor X (ten) that I explained to you before that makes his blood real thin, during all the testing this week they checked his INR and found that his blood is thinner then they like it to be so they put him on a drug called Vitamin K, so perhaps the thin blood is causing some issues so we will see how it goes over the next week or two on the K. You have to be careful with making the blood too thick when on K so he will get two doses this week of Vitamin K get his blood checked and then see where his level is at then they will tell us what his dose is for the following week. Then there is his thyroid he is now hypothyroid from what we don't know perhaps his heart meds they said or from chemo treatments so they put him on new thyroid meds but that also takes a few weeks to take effect so maybe it is the thyroid causing the coldness. Then it could be a virus and Joe's immune systems is to weak to fight it off. So we don't know and in the mean time Joe feels terrible and I am worried sick. We go to the cardiologist on the 22nd this is to address the Atrial Fibrillation with flutter that Joe has and has had from the start of all of this. I am hoping he will have good news for us and not another procedure for Joe there has been mention that Joe will need to have a ablation done for the Afib as soon as he is feeling well enough. Joe and I really appreciates your cards, phone calls and messages even if sometimes he is not well enough to return the calls and I never have enough time but we do love hearing from everyone. Please continue to pray for Joes recovery he has along road ahead of him still and needs all your prayers, love and support. God Bless and We love you.

2 comments:

  1. Hi, Sis
    Yes, it is very important that everyone continues to pray for Joe's recovery. Please all family members and friends, you must realize and understand, Joe is far from out of the woods. The stemcell transplant was just the beginning of his treatment. He has a long ways to go. He needs the power of prayer constantly!!! He is just as sick if not sicker than before he went to Boston. Please keep my sister in your prayers also. She is really trying to stay strong for Joe. And everyone who knows Mary ... they know she is a strong little ... but she is exhausted and needs a little help from above. Hopefully, soon Joe will turnaround and finally start to feel better, but until then we need to prayer very hard everyday for Joe and Mary. XOXO

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  2. Dear Mary and Joe:
    I continue to pray for both of you. This has to be the hardest challenge you will ever meet. Keep your hope alive. Love and hugs, Aunt Kay

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